Wednesday, September 10, 2014

The other shoe dropped (almost)

Know how in my last post I was talking about worrying about something happening? Well something did... This past Tuesday (9/2) I had an appointment with my GI Dr. O'Hare so I figured I should change my bag before heading there. Good thing I did! I discovered an ulcer looking thing and I started to panic I admit. I started looking up stuff and even posted a picture of it on all my "ostomy" groups. I NEVER do that, but that's how worried I was. It just didn't look right. Flash forward to my doctor appointment, Dr. O'Hare said it could possibly be a fistula though he said that was at the bottom of his list and felt it was a peristomal ulcer. Just said to treat it as such and that if it's not better in 6 weeks then we look into further.

Ok, I LOVE that doctor but I left the office that day a bit discouraged. I've dealt with infection after infection since August 2012, they don't really phase me now but I DO know what to look for. Not wanting to think the worse I came home and looked up everything to do for an ulcer. Decided that changing my bag daily would probably be best so I could keep an eye on it. So Wednesday (9/3)  night as I was changing the bag I noticed that the "ulcer" seemed deeper and redder. There was a white substance leaking from it and that is when I knew it was definitely infected. Been down that road before!

I already had an appointment with my primary doctor on Friday so I figured why not have her check it out? I've been going to her since '97 and she knows all there is to know about my health issues. Getting to Friday was no easy task, the "ulcer" was burning and hurt horribly. Finally it was time to go see my doctor and I told her everything that was going on. She asked to look at it and I had already planned on just changing it there in her office. She took a culture of it and said it was infected. Wrote me a script for Doxycycline. I dislike that anti biotic VERY much. I was on it all summer :( It's the only one that will work for me though without having to get a PICC line. She told me to contact my infection doctor and see what she wanted to do. Didn't I just get released from her care finally?!!?! Yes! So Monday (9/8) I called Dr. Melekhin's office and her nurse called me back shortly after asking me loads of questions and said she'd talk to the doctor. Later she called back saying Dr. Melekhin didn't seem to be too concerned...

Ok? Am I the only one who is? That's what I was asking myself.

It's now been a week and I've been on the anti biotic for 4 days. When I changed the bag last night it did look slightly better, so maybe it was a peristomal ulcer that got infected? Who knows but I'm glad I dodged a medical bullet this time...

Onto happier news! It's not much longer until my nephew Jett will be here!!! It could be any day now although she's not due for couple more weeks. She went to the doctor last week and was already dilated 3cm! :D  She goes back tomorrow and I'm anxious!!!


PS) Tomorrow I have to call my insurance and track down someone who can tell me how to find a Rheumatologist. 3 of my doctors have tried referring me and so far they can't find one that accepts my insurance. Really? Oh joy! Fun times. NOT

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